Day 3 of J's hospital stay started out like this. He only had his scalp IV. Not long after the day nurse came around we were able to get his IV converted to an INT so that he didn't have to be hooked up anymore. This was a great relief as we were able to walk around the room and show him the window so that he could look outside. J likes to walk around and go outside so spending three days literally in one bed or at the bedside was almost more than he (or his parents) could handle.
Vitals are good but it was a challenge keeping the leads on a fussy wiggly baby!
Monday afternoon we got the news we'd all been waiting for. J could go home! Well, not exactly home, but across the street to the Ronald McDonald house where we'd been staying. This was such a relief! The IV was DC'd and we packed up and headed out the door! We even went driving around just to get out a little!
Day 4 we went to visit an Opthamologist in San Diego who is on the Fresh Start board. We were checking J's eyes to see if he had decreased vision or any eye problems. A lot of times cleft palate babies have other problems as well and they were ruling out a specific syndrome.
J's eyes were perfect. As a matter of fact his eyes were advanced for a regular 8 month old! Since his eyes were dilated he got to wear these cool shades for the rest of the day. Thank goodness for the "no no's" (his arm bands that keep his arms and anything else out of his fragile mouth) or else he would not have kept those glasses on!
This is Lupita. She is the project coordinator at Fresh Start and the one who makes everything happen! She went with us to the Dr's office. She and the entire Fresh Start team are simply amazing! They do GREAT things for children!
Here is cool dude at the upscale San Diego mall that we went and walked around for a little while. At this point he was refusing to eat at all! I was getting worried that we'd have to go back to the hospital and get an IV b/c he was close to being dehydrated! He was pretty pitiful!
Because of his not eating Dr. Gosman decided that we didn't need to get on a plane the next morning. We decided to stay for two more days and make sure that he was well enough and strong enough to travel. Here is cool dude with his shades and "no no's".
2 comments:
I was wondering why he had the no-no's on...of course, gotta keep those sweet baby hands out of the mouth! :-) He looks great!
hehe shades and no-nos. What a stylish baby! :) I am so glad I got to see you and meet that handsome guy! Cyn
Post a Comment